Welcome to our journey. On March 9th, 2009, our 11 year old daughter tested positive for Systemic Scleroderma, a rare autoimmune disease.

As we follow Kara's health very closely, watching for and treating symptoms, but anticipating healing, we hope that through our journey, you will become our prayer partner, you will be encouraged and find hope in your own circumstances.

"As for me, I will always have hope, I will praise you more and more."
~Psalm 71:14 NIV

Tuesday, April 14, 2009

Hope and praise!!

Today Kara saw her new Pediatric Rheumatologist. We like her alot! She is throrough and spoke to us directly so we could understand her.

Although Kara may be presenting with some Scleroderma symptoms, including the spot on her leg that looks like it is the skin presence, there still isn't enough evidence to diagnose her. She is not concerned about the enlarged spleen or liver at this point, but may follow-up on those at some point. When she examined her, she couldn't feel the tip of her spleen, which means it either may not be swollen any longer or that it isn't very swollen at all. This is all GOOD news! This all still could be something else...much easier to treat and manage.

The doctor has ordered more lab tests (YAY!) for a much more comprehensive look at her autoimmune system, as well as her thyroid, and a few other things. In two weeks we will return to see her with those results and the reults of her Upper GI scope being done this Friday. All of this information will help us build the picture of whatever Kara is dealing with.

We are pleased to have found a Rheumatologist that wants to keep a good eye on Kara and will work with her Gastroenterologist to put this picture together. Praise GOD!!

"As for me, I will always have hope, I will praise you more and more."
~Psalm 71:14 NIV

2 comments:

  1. Praise the Lord! I'm so glad you have this blog. I'm encouraged just reading it! Will be praying for Kara, all of YOU, her doctors, and most importantly, for the Great Physician to step in, make things perfectly clear, and speak His word into Kara and bring her body into PERFECT HEALTH!
    love you guys,
    julie smith

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  2. Thank you Lord! We give you the highest praise for everything..big & small!! Isn't it amazing..His peace that passes ALL understanding as it eases us through the storms of life!! We will continue to pray for HIS guidance..and a continued blanket of peace for all of you!! Love ya!

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