Welcome to our journey. On March 9th, 2009, our 11 year old daughter tested positive for Systemic Scleroderma, a rare autoimmune disease.

As we follow Kara's health very closely, watching for and treating symptoms, but anticipating healing, we hope that through our journey, you will become our prayer partner, you will be encouraged and find hope in your own circumstances.

"As for me, I will always have hope, I will praise you more and more."
~Psalm 71:14 NIV

Monday, April 6, 2009

Great News! And more frustration...

This past Thursday I was chatting with my friend, Pam, in Oregon when interrupted by a few other phone calls. The first two were the GI doctor's office returning calls regarding further testing, but the third call was the "God Moment!"

As we ended our call, we prayed for one another, Pam first, then me. As I was closing our prayer, my phone rang again. I ignored it, although Pam was concerned I should grab it. I told her, "If it wasn't Jesus calling, it could wait." Well, Jesus was calling and answering another prayer!

The call was the new Pediatric Rheumatologist's office calling to schedule an appointment for Kara! WOOHOO! A second opinion...or hopefully some facts...will come soon. Kara will see her on Tuesday, April 14th.

So then frustration...Kara was supposed to see the Pediatric GI doctor this Wednesday and she has been rescheduled for April 24th. She may be able to have some GI testing done in the meantime, but we'll see.

We are watching a spot on her right leg that could be the morphea skin presence. We will show the Pediatric Rheumatologist on Tuesday and see what she says. It has grown, but who knows, it could be nothing.

Well, we keep praying, we keep waiting...it isn't so bad being in God's presence so much. 8-)

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