Well, we had learned that Scleroderma can be a challenging diagnosis and now we are finding that to be the case. The Rheumatologist is sending us back to the Pediatric Gastroenterologist for further testing on Kara's GI tract. He said that a clinical diagnosis of Scleroderma is not determined only by testing positive for the disease. Since Kara doesn't have any skin involvement at this time, the formal diagnosis and treatment will not begin unless there is proof of intestinal/esophogeal damage. Thankfully, we love our Ped GI doctor and should be able to get the required tests done without a problem.
So this leads us to the following:
~either Kara has an extremely rare case of Systemic Scleroderma that is beginning internally,
OR
~Kara is carrying the disease, but it is not "actively" attacking her body.
It is nice to have the "next step" on our journey, and the good news that she may only be carrying the disease at this point. We believe God can and may have already healed her, so keep praying and stay tuned...
Kara, Kelly and family,
ReplyDeleteThank you for sharing this journey with us. I know what it's like to have a daughter going through medical issues and the unknown. My prayers and thoughts are with you. I pray that God gives you strength during this time and that you get good news soon. I'm looking forward to hearing the great testimony of healing!! I'm adding you to our prayer chain at work as well.
Who's report will we believe? We will believe the report of the Lord. Remember God's promises in the Bible and that He doesn't always go by what the doctor reports. He is the Great Physician!!!
In Christ,
Ruby Blackwood
Kelly and Family,
ReplyDeleteHaving been through medical issues with Kevin in June when he had sudden cardiac death at age 26 for no apparent reason and having the Lord restore him to perfect health we understand completely the frustration of the lack of answers. We are praying for guidance, strength and healing.
Love,
Al and Jouleen Cotton